Each year, people across the world are invited to join together to raise awareness about rare diseases. Unlike more common conditions such as diabetes and breast cancer, many of these diseases, as well as the people affected by them, are not recognized by their own awareness initiatives throughout the year.
New initiative celebrates unsung heroes of severe allergy awareness
Individuals at risk for anaphylaxis - a severe, life-threatening allergic reaction - know the importance of having people around them who can help with allergen avoidance, such as bringing allergy-friendly food options to the company party or helping to shield from bees on the playground. Now, there is a new way to say "thank you" to the teacher, relative or co-worker who has made a difference in the life of an individual at risk for anaphylaxis. Sanofi US has launched a Severe Allergy Awareness Facebook page where individuals have a unique opportunity to create online awards via the "Celebrate Someone" app to recognize an unsung hero of allergy awareness.
Rare Disease Day 2013: Maintaining bone health in people with multiple myeloma
In honor of the sixth annual Rare Disease Day, celebrated on Feb. 28, it is important to drive awareness about some rare cancers that are many times undiagnosed until the cancer has already spread. One particular cancer, multiple myeloma, often goes undiagnosed until the disease has spread to the bone.
